“Should we create a will?"
Despite revisiting the topic multiple times over the last eight years, the stumbling block remains—the daunting decision of who will care for Brantley if Joel and I are no longer here.
The journey to establish a support system for Brantley's future feels like an uphill battle. It requires finding a truly exceptional person willing to embrace the challenge of raising a child with severe developmental disabilities, one who isn't biologically theirs. Despite the warmth of our friends and family, there's no one ready to step up for Brantley in the event of unforeseen moments, leaving us without a contingency plan for his future.
I often joke that my plan is to live forever, and while that is truly our only choice, reality reveals the impracticality of such wishful thinking. Unfortunately, it has also proven to be impractical finding a reliable alternative to Brantley’s care if something happens to Joel or I.
The uncertainty surrounding Brantley's future not only presents a daunting challenge but also leaves our family exposed to unforeseen events. An issue, I know we are not the only ones facing as we put much needed estate planning on the back burner due to lack of options.
While I don't have a solution, as long as there's a lack of support networks and resources for families dealing with the intricacies of special needs, I'll hold onto my seemingly foolish quest to live forever.
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